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Genetic Conditions Rare ConditionsURL: http://www.kumc.edu/gec/support/ ODP description: Lay advocacy and support groups, information on genetic conditions birth defects for professionals, educators, and individuals. Page title: Genetic Conditions / Rare Conditions Information Site Page description: Information on genetic conditions and birth defects for professionals, educators, and individuals. Links to lay advocacy and support groups, clinics with genetic counselors and geneticists, sites for children and young adults. Maintained by Medical Genetics, University of Kansas Medical Center ![]() |
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med3qURL: http://www.med3q.com ODP description: Free online community for lifestyle and chronic disease management for patients and healthcare providers. Personal, secure tools to track diet, exercise and health. Page description: Free online community for lifestyle and chronic disease management for patients and healthcare providers. Personal, secure tools to track diet, exercise and health. Itââ¬â¢s your health. Make it personal. ![]() |
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CIDP Organization of USAURL: http://www.cidpusa.org ODP description: A non profit support group for Chronic Inflammatory Demyelinating Polyradiculoneuropathy in USA. Page title: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) support group Page description: A guide for those suffering from Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) , poluneuropathy, diabetic polyneuropathy ![]() |
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Polio Echo, IncURL: http://polioecho.org ODP description: Support group for people with Post-Polio Syndrome in the Phoenix, AZ area. There is information on the local chapters and their activities and speakers as well as updated articles and events to come. Page title: Polio Echo, Inc. ![]() |
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Montgomery County Stroke Association (of Maryland)URL: http://www.mcstroke.org ODP description: Provides stroke survivors and caregivers with information about strokes. Page title: Montgomery County Stroke Association Page description: The Montgomery County Stroke Association (MCSA) is a private, non-profit support group for stroke survivors and their caregivers living in or near Montgomery County, Maryland. ![]() |
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Learning Disability HistoryURL: http://www.learningdisabilityhistory.com ODP description: Historical overview on the learning disability institution as well as being a resource for memorabilia and factual information on the three hospitals in Herfordshire: Cell Barnes, Harperbury and Leavesdon. Page title: A Learning Disability History ![]() |
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Christians with Chronic Invisible IllnessesURL: http://members.shaw.ca/zonaszone/christian.html ODP description: Access to several Christian groups for people with invisible illnesses such as chronic fatigue (CFS), fibromyalgia (FM) and multiple chemical sensitivities (MCS). Page title: Links - Christians with Chronic Illnesses - CFS, M.E., FM, MCS; and more!Homebound'ers Exchange, Safe Home Design & Remodeling, Spiritual Warfare, Page description: Zona's list of Christian e-lists, Homebound'ers XChange, Set Free, CMCS-ei, Just Around the Corner, Underwings, Designed 4 Living, and more. ![]() |
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Neurosarcoidosis Support GroupURL: http://health.groups.yahoo.com/group/neurosarcoidosis/ ODP description: A support group for anyone with neurosarcoidosis, CNS sarcoid, systemic sarcoidosis, or anyone wanting more information on this rare disease. Includes live chats. Page title: Neurosarcoidosis : A home of loving support for anyone living with neurosarcoidosis or wanting more information on this rare disease. Page description: Neurosarcoidosis: A home of loving support for anyone living with neurosarcoidosis or wanting more information on this rare disease. ![]() |
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NJ Foundation for the BlindURL: http://www.njffb.org/ ODP description: Our organization provides the blind and visually disabled community with rehabilitation training, social events, and vacations. We are located in Denville, NJ at Diamond Spring Lodge. Page title: New Jersey Foundation for the Blind Page description: The New Jersey Foundation for the Blind is a private, non-profit organization that serves the blind and legally blind population of New Jersey. Located in Denville, NJ at Diamond Spring Lodge, the Foundation offers rehabilitation training, vacations, and social events. ![]() |
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PatientsLikeMeURL: http://www.patientslikeme.com ODP description: Track and share your progress, treatments, and symptoms in a community of patients. Communities for ALS, MS, Parkinson's and HIV/AIDS. Page title: PatientsLikeMe : Patients Helping Patients Live Better Every Day Page description: PatientsLikeMe: Share your treatment experiences. Find patients just like you. Learn from others who know. Join now! ![]() |
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West Virginia Lymphedema NetworkURL: http://www.wvlymph.org ODP description: The West Virginia Lymphedema Network is a volunteer support group in West Virginia. The mission is educate and increase awareness of lymphedema treatment, discuss medical research, and insurance issues. Page description: West Virginia Lymphedema Network members meet as a support group to provide education and guidance on lymphedema issues. ![]() |
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Parkinsons Disease Caregiver InformationURL: http://www.myparkinsons.org ODP description: Virtual support group. Essential information for anyone who is caring for someone with Parkinson's disease. Discussion forum and support group information. Page title: Parkinson's disease Caregiver Information Page description: A resource for anyone who is caring for someone with Parkinson's disease. Caregiver Information, online resources, and a full featured discussion forum. ![]() |
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