wectar - category Health-Conditions_and_Diseases-Rare

Subcategories
Aarskog Syndrome@	Aase Syndrome@	Abetalipoproteinemia@	Ablepharon-Macrostomia Syndrome@	Adie Syndrome@	Adrenoleukodystrophy@
Agnosia	Aicardi Syndrome	Alagille Syndrome@	Alström Syndrome	Alternating Hemiplegia@	Apert Syndrome@
Arthrogryposis@	Ataxia@	Bardet-Biedl Syndrome@	Barth Syndrome	Behcet's Syndrome@	Blastomycosis@
Botulism@	Celiac@	Cerebrocostomandibular Syndrome	Charcot-Marie-Tooth Disease@	Cleidocranial Dysplasia	Cockayne Syndrome@
Coffin Lowry Syndrome@	Cornelia De Lange Syndrome@	Corticobasal Degeneration@	Costello Syndrome@	Craniofrontonasal Dysplasia@	Cri du Chat Syndrome@
Crigler-Najjar Syndrome@	Cyclic Vomiting Syndrome@	Cystinosis	Dandy Walker Syndrome@	Degos	Dercum Disease@
DiGeorge Syndrome@	Dubowitz Syndrome@	Dystonia@	Ehlers-Danlos Syndrome@	Erythromelalgia	Fabry's@
Familial Dysautonomia@	Fanconi Anemia@	Fibrodysplasia Ossificans Progressiva@	Floating-Harbor Syndrome@	Friedreich Ataxia@	Galactosemia@
Gaucher's@	Gerstmann Syndrome@	Glutaricaciduria@	Guillain-Barre Syndrome@	Gustatory Sweating@	Hallervorden-Spatz Syndrome@
Hemihypertrophy@	Hemophilia@	Hereditary Angioedema@	Hidradenitis Suppurativa@	Homocystinuria@	Horner Syndrome@
Huntington's@	Hydrocephalus@	Idiopathic Pulmonary Hemosiderosis@	Incontinentia Pigmenti@	Isaacs Syndrome@	Jacobsen Syndrome
Joubert Syndrome@	Kearns Sayre Syndrome@	Kernicterus@	Klippel-Feil Syndrome@	Kluver-Bucy Syndrome@	Laurence-Moon Syndrome@
Leigh's@	Lesch-Nyhan Syndrome@	Lissencephaly@	Lowe Syndrome@	Madelung's@	Mannosidosis@
Marfan Syndrome@	Mastocytosis@	Meige Syndrome@	Melorheostosis	Mobius Syndrome@	Moyamoya
Multiple Hereditary Exostoses@	Myotonic Dystrophy@	Nail Patella Syndrome@	Narcolepsy@	Neurofibromatosis@	Neuroleptic Malignant Syndrome@
Niemann-Pick@	Noonan Syndrome@	Olivopontocerebellar Atrophy@	Ollier Disease	Opitz Syndrome@	Osteogenesis Imperfecta@
POEMS Syndrome@	Pallister-Hall Syndrome@	Pallister Killian Mosaic Syndrome@	Pemphigoid	Pemphigus	Phenylketonuria
Pick Disease of the Brain@	Pierre Robin Syndrome	Porencephaly@	Porphyrias@	Prader-Willi Syndrome@	Progeria
Propionic Acidemia@	Proteus Syndrome@	Prune Belly Syndrome@	Pseudoxanthoma Elasticum@	Refsum's@	Retinoblastoma@
Rett's Syndrome@	Rickets@	Robinow Syndrome@	Rubinstein-Taybi Syndrome	Russell Silver Syndrome@	Sanfilippo Syndrome@
Schizencephaly@	Shwachman Syndrome@	Smith-Magenis Syndrome@	Smith Lemli Opitz Syndrome@	Spina Bifida@	Stickler's Syndrome@
Stiff-Person Syndrome@	Sturge-Weber Syndrome@	Subacute Sclerosing Panencephalitis@	Tangier@	Tay-Sachs@	Thalassemia@
Thrombocytopenia Absent Radius Syndrome@	Tourette Syndrome@	Treacher Collins Syndrome@	Trichothiodystrophy@	Triploidy	Tuberous Sclerosis@
Turner Syndrome@	Tyrosinemia	Usher Syndrome@	VACTERL Association	Velo-Cardio-Facial Syndrome@	WAGR Syndrome@
Waardenburg Syndrome@	Weaver Syndrome@	Wegener's Granulomatosis	Williams Syndrome@	Wilson's Disease@	Xeroderma Pigmentosum@
Zellweger Syndrome@	Zollinger-Ellison Syndrome@

	Office of Rare Diseases URL: http://rarediseases.info.nih.gov/ ODP description: Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
	National Organization for Rare Disorders, Inc. URL: http://www.rarediseases.org/ ODP description: Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. Page title: NORD - National Organization for Rare Disorders, Inc. Page description: National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.
	Fibrous Dysplasia Support Online URL: http://members.cox.net/fdsupport/index.html ODP description: For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. Page title: Fibrous Dysplasia Support - new home page at fdsol.org Page description: Site is dedicated to providing support for individuals and families seeking answers on Fibrous Dysplasia, a rare bone disease that effects children.
	European Organisation for Rare Diseases URL: http://www.eurordis.org ODP description: Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe. Page title: Eurordis - European Organization for Rare Diseases
	Human Growth Foundation URL: http://www.hgfound.org/ ODP description: Information about growth-related disorders through education, research, and advocacy. Member driven organization. Page title: Human Growth Foundation Home Page Page description: helping adults and parents of children with disorders of growth and growth hormone through research, education, support, and advocacy
	Kindler Syndrome URL: http://digilander.libero.it/camdic/KINDLER.html ODP description: An article and case study of this rare disease. Includes links. Page title: KINDLER SYNDROME
	Cherubs URL: http://www.cherubs-cdh.org ODP description: A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. Page title: CHERUBS- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support Page description: CHERUBS is a non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia- visit our site and read some truly inspirational stories.
	Contact a Family URL: http://www.cafamily.org.uk ODP description: Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. Page title: Contact a Family - for families with disabled children: information on rare syndromes and disorders Page description: Contact a Family is a UK charity for families with disabled children. We offer information on specific conditions and rare disorders.

Wectar - Health - Conditions and Diseases - Rare Disorders

Office of Rare Diseases

National Organization for Rare Disorders, Inc.

Fibrous Dysplasia Support Online

European Organisation for Rare Diseases

Human Growth Foundation

Kindler Syndrome

Cherubs

Contact a Family